Bioethics Discussion Blog: Life With Doctors: A Psych and Physical Medical Merry-Go-Round

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Monday, April 11, 2005

Life With Doctors: A Psych and Physical Medical Merry-Go-Round

OK Doctors.. you think you are doing a good job? Well, read the following, written by a visitor (who I will keep anonymous) to my blog today. Maybe you, also I, may have to improve a bit. Oh well.. there is always the next patient. ..Maurice.


Arrived @ Blog while seeking to understand "MD". (in the universal
sense). (PT does not know what a "Blog" is.sorry :-(...)

PT has 40+ yr history with MD (many, many, MDs...as in the individual
sense)

MD = impossible to understand.

MD always gets frustrated with PT..even though PT always tells truth,
even though, PT = normally upbeat/happy (even whilst dying. :-()

Frustrated MDs threw many temper tantrums at PT - (snide remarks,
yelling, screaming, throwing things, sometimes even walking out..)
PT's heart became broken (no pun intended). Sometimes, PT cried.

But PT had no power...MD had it all.

Because MD often accused PT of hypochondria, treatment was delayed for
YEARS with each & every illness.
MD was wrong. MD has NEVER apologized...

Eventually, PT concluded MD = Medical Demon. NIH = Nuts in House.

One day, after reaching this conclusion, PT told a "nice" Nurse
practitioner the truth about how PT was feeling. (PT felt suicidal
:-()
"Nurse practitioner" had PT "escorted" by police to Psychiatric
Hospital. PT was soon "incarcerated" therein. PT observed, Psych
workers = more messed up than PT will ever be!!

PT was/is physically ill. (Why did/does MD still not believe PT?)

Who is PT?

PT = "Left Main Coronary Artery Fistula", Cardiology in Review, Feb
2004.
(Cardiac symptoms dismissed for 5 years by multiple MD's, including
cardiologists)
PT = Hashimoto's Thyroiditis (13 yr wait for diagnosis/treatment)
PT = Premature Ovarian Failure (5 yr wait for diagnosis, 10+ yr to
find effective HRT)
PT = Alopecia (5 month wait for diagnosis - no treatment as of yet...)
PT = Ruptured Appendix (MD's waited 3 days after initial onset of
appendicitis, before attempting surgery, because an MD didn't want to
"risk" surgery so
soon after fistula repair.)
PT is also well traveled. Degreed. Sensitive. ( MD never knew. Or
cared? )

Now PT is "stuck" in psychiatric-medical-merry-go-round ( and remains
stuck in the "physical"-medical-merry-go-round.as well.)

Who is Maurice?

1 Comments:

At Thursday, June 16, 2005 9:08:00 AM, Blogger TexNNYC said...

Further Comments on The Doctor/Patient Relationship:

I have suffered from a relatively unknown aliment for over two years now. The frustrations that I have experienced in attempting to get a doctor to open his mind to something that he has not yet learned are becoming extreme.

I am a very intelligent person who observes subtleties, nuances and minutiae in most situations and when I decide to focus on a particular situation I can spend months speculating, on and off, without coming to a conclusion. When I arrive at a conclusion it is only after exhaustive research and eliminating all the possibilities that are close yet inadequate to explain the situation. I have always been a very adept person who is not quick to react to difficult situations with negative feelings.

I have spent the first year and a half researching my symptoms in every possible way. I have read extensively both from standard medical sources as well as from research sources. I have talked with medical persons who may in any way know something about the problem I am having. I have finally arrived at the best possible conclusion given all the facts. I am open to a better diagnosis but it would have to fit the symptoms better than my conclusion.

In these years I have discovered a fundamental truth about the more than 12 or more medical professionals I have consulted with. With the exception of two persons all the rest would appear to listen to my problems and then, and this is universal, attempt to persuade me that the diagnosis must come from what they have already learned (about the etiology of my problems). What they do end up describing does not, in most ways, fit what is occurring!

They would ignore, as though they had not heard, the parts of my discourse that did not fit their diagnosis. This response, of selecting from what I have told them that which fits their diagnosis of the moment, is so knee-jerk as to be funny if it were not that it involved my suffering.

It had to be obvious to them that I had learned a great deal about the symptoms and the possible causes for them; yet they would proceed as though I were a first grade child sitting at the feet of the wise man and explain to me that which was patently obvious as not able to explain my problem. It is at this point that I would, with diplomacy and tact, attempt to discuss with them the issues that were not reasonable in their conclusions or diagnoses or simply did not fit my descriptions. When I would point out inconsistencies or inadequacies in their analyses they would invariably appear to not hear me and consequently to not respond to these points. The end result would be that I would receive one of three responses; either annoyance or immediate referral to another physician, or both.

I cannot help but wonder how many millions of persons have suffered and even died needlessly because they presented something that the medical profession had not yet heard of from “reliable sources,” i.e. each other and medical journals and consequently did not receive the treatment that might have alleviated their suffering and perhaps have saved their lives.

I have two important things to say about this behavior:
1) That these doctors (and from my sampling I would guess many if not most other doctors) will never learn anything truly new. They may add on to the information they have stored up to that point but anything new is beyond their grasp…at least when it comes from the mouth of a patient!
2) That there is a terrible arrogance in this position that they take. Only other physicians or medical research can truly change what they have learned…certainly not something from the mouth of a once again, God forbid, patient!

I am truly deeply disgusted with the medical profession. They have chosen to ignore much of what I, the patient, have to say. When all is said and done, and what physicians appear to have forgotten or never have learned is that in spite of all the assumed effectiveness of diagnosis from test results, the best diagnosis will come from the mouth of the patient.

I continue to suffer and be insulted. It has been suggested to me that I may be delusional. I have been asked if I am seeing a psychiatrist. I have been told that what I am describing “is physiologically impossible.” How dare these people not only ignore what I am truly saying but indeed add insult to injury? And I still have not even been offered palliative care for my symptoms.

One, and just one, of the disturbing facts that come out of this situation is that since licensed physicians are the only persons who have availability, by and large, to the necessary tests and treatments that could possibly help me I end up being excluded from access to these very things which I need.

If it were up to me I would strip every physician of his license and let market forces dictate as to who should practice and who should not. This meddling in the rights of the individual ends up with an elite class who are not only arrogant but paternalistic. Do not underestimate the public’s ability, in the end, to choose the best providers both by their education and by their ability to hear their clients!

The two medical practitioners who believed me responded by saying that as they have not learned of my condition it is best to refer me on.

PS I am truly tired of hearing the argument that so often defends doctors’ behaviors: that they have lost so many potentially income earning years and, that they have put such effort in their becoming a physician. This is rot! They only have chosen their path and everything points to the fact that they intend upon making up for the lost wages! Do not make others pay for their behavior!

 

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